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Member of the Month January 2025

Member of the Month January 2025

Our Member of the Month this month is Myles Love.

Myles was diagnosed with high-risk stage 4 neuroblastoma last December and has been bravely fighting for over a year. During this time, he has spent approximately 95% of his days in the hospital. Despite the challenges, Myles has shown incredible resilience. He has undergone four central line placements after developing sepsis in three of them...
Member of the Month December 2024

Member of the Month December 2024

Our Member of the Month this month is Seren Hughes.

In September of this year, after months of progressively declining health, difficulty eating, and becoming so physically weak that she could no longer walk or stand, Seren was diagnosed with primary Hemophagocytic Lymphohistiocytosis (HLH). This diagnosis came on the heels of three significant losses in Seren's family, compounding the devastation they were already enduring...
Member of the Month October 2024

Member of the Month October 2024

Our Member of the Month this month is Jack Gyde.

2024 started off as a perfectly normal year for us. Jack was settling into his first year at school and he appeared to be a healthy and happy 5 year old. In the middle of January Jack started to limp and this escalated into intense leg pain. After several trips to the gp and a&e we were sent to Bristol children's hospital. Jack had an abdominal ultrasound which revealed a mass above his right kidney. This sent us on a whirlwind two weeks of tests, scans and biopsy's. In February we were given Jack's diagnosis, stage 4 high risk neuroblastoma. Our hearts were shattered and lives instantly turned upside down...
Member of the Month September 2024

Member of the Month September 2024

Our Member of the Month this month is Grace Wilson.

In early July of this year, at just 10 months old, Grace was diagnosed with Acute Lymphoblastic Leukaemia. Since then, her treatment journey has been intense and challenging. She has undergone multiple rounds of chemotherapy, bone marrow aspirates, and lumbar punctures, and recently began immunotherapy. Despite the rigorous treatment plan, Grace is responding remarkably well, and her family is incredibly proud of her strength and resilience...
Member of the Month August 2024

Member of the Month August 2024

Our Member of the Month this month is Sophia Osborne.

Sophia arrived 15 weeks earlier than expected because of a severe case of pre-eclampsia. At just six weeks old, she faced a life-threatening infection called Necrotizing Enterocolitis (NEC). As a result of this infection, Sophia had to undergo surgery to remove 75% of her lower intestine and now relies on a pump for her nutrition...
Member of the Month July 2024

Member of the Month July 2024

Our Member of the Month this month is Ivy-Rose Peach.

In October 2023, Ivy-Rose received a diagnosis of B-Cell Acute Lymphoblastic Leukemia. Given her status as a high-risk patient due to having Down Syndrome, she was transferred to Bristol Children's Hospital, where she remained for eight months...